Resources for COPD Patients & Caregivers

SECTION 1 – Diagnosis

What is COPD? How do you know if you have COPD and what to do if you have it? Attached are some basic resources screening for your risk of COPD, what COPD is, the lung test to find out if you have COPD, and other basic information.

Am I at Risk for COPD?

COPD May Take Away More Than Your Breath

Spirometry and COPD Testing Health Your Lungs Master

Spirometry and COPD (English)

Spirometry and COPD (Spanish)


PFTs for COPD Spanish

COPD Foundation Resources COPD & YOU

Genetics and Lung Disease

There is a genetic form of lung disease called Alpha-1 Antitrypsin Deficiency.  It can be detected with a simple, free confidential blood test which involves having your finger pricked and drops of blood put on a special test kit and mailed to a lab for analysis.  Treatment for this genetic form of lung disease is different from the treatment of people without this genetic condition.

The National Heart Lung Blood Institute funded study to find out more about genetics and COPD, by studying 10,000 people at 21 clinical sites throughout the U.S.  More information is available here:

About COPD Gene Study

SECTION 2 – Living with a Chronic Condition

OK, you know you have COPD and maybe some other health conditions that you will have for the rest of your life.  What now?  Below are some resources to help you thrive with these conditions, living as full and active a life as possible.

COPD Foundation Resources Page

Creating New Vision–Life with Chronic Disease

Talking About COPD (Master)

Talking about COPD

Talking about COPD (poster)

Talking about COPD (Spanish)

Living with COPD

Living with COPD (Spanish)

COPD Checklist and Action Plan

When COPD Symptoms Get Worse (Spanish)


SECTION 3 – Treatments

COPD Checklist and Action Plan

COPD Checklist and Action Plan (Spanish)

COPD Exacerbations

When COPD Symptoms Get Worse (Spanish)

SECTION 4 – Medications

There are lots of different medications currently available and more in research and pending approval.  Taking medications regularly as directed is an important part of staying as healthy and active as possible.  Be sure to work closely with your prescribing healthcare provider and pharmacist to have any questions about your medications answered, so you are taking your medicines as effectively as possible.  Keep a diary to note any possible reactions, improvements, problems that may be connected with any of your medications; summarize and share the information with your healthcare provider.  Periodically demonstrate how you take your medications to your healthcare providers and/or pharmacist, to be sure you’re getting as much as possible from your treatments.  Also included is information about spacers, which can be used with many inhalers and help reduce side effects and improve delivery of medicine.

Know Your Medicines

Videos by American College of Chest Physicians Foundation*

*How to use an Inhaler

*How to use a Spacer